Tuesday, September 16, 2025

September 16

Image from my memoir 

Today I reflect on how lucky I am

I have access to great medical care.

I have a personality that is curious, researches, and demands 2nd and 3rd opinions.

I have intuition from Lillian, my grandmother I never knew.

I have knowledge from my sister Jan and my friend Kristin.

Knowledge that was instrumental in saving my life.

Knowledge I received only because of their cancer diagnoses and pain.


It's been 27 years today since I had potentially fatal fat and tissue removed from my brain; a brain tumor.

17 years since I had potentially fatal fat and tissue removed from my chest; my breast tissue.

17 years since I had all of my reproductive organs removed from body.


The potentially fat and tissue has been replaced with deep gratitude.


To mark September 16th every year, I get myself something 100% unnecessary and extravagant; just to remind myself,

I'm worth it.


This year, I can't do it.

As an advocate in the hereditary cancer space for 15 + years, I have a non-medical lump in my throat from a runway show. Yes, a runway show at New York Fashion Week.

I attended the AnaOno/Cancer Culture Show at NYFW and watched women with metastatic breast cancer fiercely walk the runway.

Some of them very young.

Since the show, I've felt two things: relief and being shaken to my core.

My good fortune is not lost on me.


▪️Metastatic breast cancer will at some point, cause their death.

▪️Only 2% of funding goes to MBC.

▪️116 women die everyday from metastatic breast cancer.

▪️Approximately 30% of breast cancer patients diagnosed with early-stage breast cancer will go on to develop metastatic breast cancer (stage 4).


I'm thinking of these women, their day to day life, their medications, side effects, their families; thinking of friends who are now metastatic.

This year my extravagant gift goes to them via Cancer Culture funding to MBCure.

They are all 100% necessary and worth it.