https://t.co/MPb3vYXJTZ— Pamela Munster (@bernmunster) January 17, 2019
talking to patients about BRCA mutations
Thursday, January 17, 2019
Wednesday, January 2, 2019
Sunday, December 9, 2018
GOODREADS AND AMAZON
HOLIDAY BOOK GIVEAWAY OF MY MEMOIR.
AMAZON CLICK HERE TO ENTER!
GOODREADS CLICK HERE TO ENTER!
BOOK IS AVAILABLE AT THESE ONLINE RETAILERS
Thursday, November 29, 2018
Saturday, October 6, 2018
View this post on Instagram
xo Honoring Norene xo Norene and Mom > 1970's Norene ( on the left) was my mom's best friend When mom's best friend Norene "got" breast cancer she was 34, but wasn't diagnosed until age 35. Her first doctor pooh-poohed the lump in her breast, telling her she had lumpy breasts and suggested she go home and eat more protein. So, when she went back at age 35 and the breast cancer had spread to her lymph nodes, doctors told her she had 5 years to live. Norene died exactly 5 years later. Norene died 40 years ago today, age 40. #metastaticbreastcancer
A post shared by Amy Byer Shainman (@brcaresponder) on
Friday, August 31, 2018
As a result of that test, I have had to make a lot of decisions that have and will continue to impact not only me but my entire family. In the beginning of my journey, my children were small. My husband and I could move through those decisions and the kids were blissfully unaware. But, now they are a bit older. And my family health history continues to play a role in our own family’s story. I wonder how I can provide them with a framework for understanding this genetic mutation has profoundly affected our family. We have many more BRCA obstacles yet to come. There is no doubt that my daughters and my son will have questions. It became clear that we would need to have conversation.
But, it was also clear that it had to be handled with care.
And so Proactive Genes was born with the idea that parents could benefit from tools that could help them start a conversation with their children about family health history. Beyond that, Proactive Genes strives to become a community where parents can share their stories, concerns, fears, and successes as they parent and move through hereditary risk and disease.
As genetic information and testing becomes more readily available, it will have a tremendous impact on medical decisions going forward. Parents will need to consider how to effectively share this information with their children as it will play a role in both their own lives as well as their children’s lives. Proactive Genes’ core mission is to encourage children to learn about how their family’s health history can impact their own health.
This week, I am launching our first tool in our Proactive Genes’ tool box, a children’s book entitled Mom’s Genes. Intended for children ages 3 – 7, this first installment will assist parents and as a stepping stone for young ones to easily grasp sophisticated concepts in an interactive and playful manner. With age appropriate content, rhythm verse and vivid illustrations, Mom's Genes can help you teach your children the importance of being proactive about their health and wellness at a young age.
You can also listen to Shannon here on