Sunday, August 16, 2015

The BRCA BROTHERHOOD - Support for Men

GUEST POST by Dave Bushman
Dave Bushman is the creator of the BRCA BROTHERHOOD 

Discussions about BRCA gene mutations have focused on women. However, it is also important that men be part of the discussion. Men are equally as likely to carry as well as pass on a BRCA genetic mutation. MALES need to part of the BRCA discussion as there are many different issues that affect them as well.

1. Men who are BRCA positive with or without a cancer diagnosis.

2. Men whose wives/partners are BRCA positive (with or without a cancer diagnosis)

3. Men who have a child who is BRCA positive (with or without a cancer diagnosis).

4. Men who are BRCA positive but have a child who has not yet undergone genetic counseling or testing.

5. Men who are BRCA positive but has one or more relatives who have not yet undergone genetic counseling or genetic testing.

Men in each of these categories have their own specific concerns, needs, and interests. 

With that in mind, I set up The BRCA Brotherhood Facebook group, a private group for men only. It is the companion group to The BRCA Sisterhood Facebook group, which is for women only.

No one needs to go through these issues alone. The issues surrounding Hereditary Breast and Ovarian Cancer affect women, men, spouses, significant others, siblings, & children.

The purpose of The BRCA Brotherhood is to allow men who have a BRCA gene mutation or have a family member with a BRCA gene mutation an opportunity to discuss all the various issues in a safe, supportive place.

Sunday, August 2, 2015

Monday, July 20, 2015


Ellen Matloff, MS, CGC is the President and CEO of My Gene Counsel. 
Ellen is the founder and former director of the Cancer Genetic Counseling Program at Yale School of Medicine and a lead plaintiff in the 2013 United States Supreme Court gene patent case. Ellen has authored more than 50 scientific publications in the field, is an established educator, lecturer and media spokesperson and has received national awards for her ongoing patient advocacy efforts.

Wednesday, March 25, 2015

Updated post: 4/15/15 INTERVIEWS "Angelina Advocacy Effect"

@BRCAresponder after Angelina Op-Ed #2

A fellow BRCA advocate reached out to me and asked me for tips on doing interviews surrounding Angelina's latest op-ed and BRCA/hereditary cancer.  I thought this was a great opportunity to share these tips in a blog post for others doing interviews. My interviews following Jolie's 2nd op-ed are listed here as well.
XO Amy @BRCAresponder 

1. Be yourself!
2. If you are on going to be on television, wear something you are comfortable in, more fitted, not oversized, plus a good solid color. Avoid busy prints or the color green--not best for television. 
* even if you are a no-makeup person, television studio lights can really wash you out.  Wearing just a bit of HD foundation and HD powder, and blush or bronzer will really help you just look more like yourself on television. Not confident in your makeup application skills? Tip: just mix a dime size drop or less of foundation with your regular moisturizer! Let dry a few minutes before dusting of setting powder and your bronzer. 
3.  Have 1-2 key points in your head that you really want to get across no matter what interview questions are asked.
4.  For me, I always stress the importance of genetic counseling in the genetic testing equation in EVERY interview.
5. LISTEN to what the interviewer is asking you and know that your answer really has an opportunity to educate, save lives, empower.
6.  Refrain from using words like "should"- or "you should" or any judgement of others' cancer risk management choices. Everyone is different. Do your best to not say "UM". Practicing key points in advance can help avoid this.
****7.  Make sure you know the facts/science behind BRCA/Hereditary cancer and state those-not your opinion. Do your best to encourage the television station/producer/ interviewer that it is really smart that you be joined by an expert in GENETICS. The National Society of Genetic Counselors , or a breast surgeon, gynecological oncologist, or oncologist extremely familiar with BRCA/Hereditary cancer. *Language is very important. Say, recommendations as per research (science)… or my experience was...
8.  Talk about facts and/or your story w/compassion and passion.
9.  Breathe
10.  Be confident, you are educating and saving lives with your interview.
11.  You are the expert of your own experience. 
12.  You can do it, you are amazing, embrace your opportunity in the spotlight!


@BRCAresponder in the news after Angelina Op-Ed #2
3/24/15 @BRCAresponder on @WPTV news 
web chat transcript



RADIO SHOW 4/13/15