HAPPY NEW YEAR 2014
Welcome to my new blog…
The BRCA Responder
First, I tend to "not keep very quiet" regarding all things BRCA.
For those of you that already follow me on twitter…well, you know that!
I tend to "respond"…constantly, incessantly, passionately--you get the point.
Secondly, I inherited my BRCA1 gene mutation from my Dad. MY BRCA STORY
When I was younger and my Dad would ask me a question--or yell for me in my room,
he would always follow up by then yelling out:
So, Dad helped me in becoming quite the "Responder".
When you combine that with my passion for BRCA awareness, education, and advocacy you get what else?
The BRCA Responder.
So WELCOME to my new blog.
I hope you log on to my blog regularly and see how the Responder is responding.
My first post is the letter I wrote today to Dr. Virginia Moyer addressing the recent new USPSTF BRCA/genetic testing guidelines. Please feel free to copy this verbatim and/or modify it as it pertains to you and then send in two copies: one to Dr. Moyer and one to the USPSTF Senior Project Coordinator. After all, things don't change unless you respond!
So, in the words of my Dad…
Virginia Moyer, M.D., M.P.H. (Chair)
540 Gaither Road
Rockville, MD 20850
THE ENVELOPE: http://stacybrcastory.eventbrite.com
Doctors please refer all patients (including patients who are cancer survivors) concerned about BRCA mutations and cancer genetics to a certified genetic counselor. Please do not disregard their concerns as those concerns may be valid. Your patient may very well have a high risk for cancer (and if they already have one cancer may very well be at high risk for a second cancer) due to a genetic mutation, family history, or other factors in which you are not familiar or trained to decipher. If your patient had concern about heart disease you would refer him or her to a cardiologist. Please follow suit in regard to genetics. Please refer patients who are concerned about cancer risk to a certified genetic counselor.
MY BRCA STORY: http://amybrcastory.eventbrite.com
featured in the book PINK MOON LOVELIES EMPOWERING STORIES OF SURVIVAL compiled by Nicki Boscia Durlester
featured essayist in the book LETTERS TO DOCTORS: Patients Educating Doctors by Practical True-Life Experiences by Teri Smieja and Jonathan Herman, MD
Cc: USPSTF Senior Project Coordinator