Resurrection Lily was published three years ago today. It is a fantastic feeling to know that people are still discovering it, and it's resonating. Knowing there is a trickle-down effect and people recommend it to their friends brings me a lot of personal satisfaction. Positive feedback continues to fuel my BRCA/hereditary cancer advocacy efforts. Gratitude to all of you who helped make it happen. ~ Amy
Sunday, December 5, 2021
Tuesday, October 12, 2021
I recently spoke with Chelsea London Lloyd on her DYING OF LAUGHTER podcast. Chelsea's podcast features interviews with millennial comedians and funny-at-heart humans with a deceased parent or sibling. About Chelsea London Lloyd: Chelsea grew up with two sick parents; her dad died of ALS after a 15 year journey + her mom currently combats stage 4 metastatic breast cancer for the second time. Bonus episodes include interviews with grief counselors, funeral directors, cancer survivors, previvors, therapists, life coaches, oncologists + genetic counselors to name a few.
Wednesday, September 29, 2021
Friend & fellow advocate Georgia Hurst writes "Today, Wednesday, Sept. 29th, is Previvor Day. Some people minimize the experience of Previvors. Suffering is not a competition. Minimizing what others go through is never okay." @NancysPoint #previvorday https://t.co/GRT7AbyMUs— Amy Byer Shainman (@BRCAresponder) September 29, 2021
Wednesday, September 1, 2021
Friday, July 9, 2021
Friday, June 18, 2021
So proud to be a part of this exceptional project. We have an unbelievable director and an amazing cast & crew. #art #beauty #film #BRCA #storytelling #RealLife@TheLesleyWarren @devinsidell @mariannapalka @Jaime_King @MichaelSRoark https://t.co/ioORtW7eiI— Amy Byer Shainman (@BRCAresponder) June 18, 2021
Wednesday, June 16, 2021
Tuesday, June 8, 2021
Friday, March 26, 2021
Sunday, March 7, 2021
Wednesday, March 3, 2021
DID YOU KNOW?
Tuesday, March 2, 2021
"The main tool parents can use to avoid passing down monogenic conditions (those controlled by a single gene) is preimplantation genetic testing (PGT-M), a process that takes place alongside in vitro fertilization (IVF). In this process, embryos are screened for the genetic variant in question. Only the nonaffected embryos are chosen for implantation and, hopefully, a successful pregnancy."
I was compelled to "respond" about the ACMG portion of her piece. The American College of Medical Genetics and Genomics is an organization that represents practitioners in the field of medical genetics. The ACMG is trying to block genetic counselors from ordering genetic testing (but allow all physicians, of any specialty and with no training in genetics, to do so). WHAT?
Here is the direct link to my response: https://medium.com/@BRCAresponder/jessica-20754ef7cf6b
Thursday, January 14, 2021
So many wonderful partners joining us for this event with @BRCAresponder and @EllenMatloff ! Some are @BRCLibrary @windsorpublib @GRNFREELIB @PageAZLibrary @decaturpublib @CharlotteLibVT @PellaLibrary @SpfldMassLib @jewishgenetics @Sharsheret pic.twitter.com/7C5nVCWWrp— NNLM All Of Us Community Engagement Network (@nnlmAoU) January 29, 2021
READING CLUB INFORMATION PAGE: https://nnlm.gov/all-of-us/nnlm-reading-club/resurrection-lily
EVENT LINK: https://youtu.be/PJBzdgCTn2E