@BRCAresponder

Amy Byer Shainman - Providing education, advocacy, and support surrounding BRCA & other Hereditary Cancer Syndromes Author, Producer

Thursday, December 21, 2017

Happy Holidays! Wishing you love and peace XO Amy

Posted by BRCAresponder at 6:01 AM 1 comment:
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Welcome to my blog!

Welcome to my blog!

Goodreads Book Giveaway

Resurrection Lily by Amy Byer Shainman

Resurrection Lily

by Amy Byer Shainman

Giveaway ends February 27, 2021.

See the giveaway details at Goodreads.

Enter Giveaway

Breast Advocate App - FREE

Breast Advocate App - FREE
Free breast cancer surgery app for Apple iPhone and Android that provides evidence-based information and surgical recommendations, personalized for you.

BOOK REVIEWS "Resurrection Lily"

  • Amazon Reviews
  • Clarion Foreword Review
  • Emmabbooks.com Review
  • Feathered Quill Book Review
  • Goodreads Reviews
  • IndieReader Review
  • Kirkus Reviews
  • OnlineBookClub Review
  • Reader Views Review
  • Readers' Favorite Review

Search This Blog

1st Place for Resurrection Lily - 2020 CIPA EVVY Book Awards!

1st Place for Resurrection Lily - 2020 CIPA EVVY Book Awards!

ERIC HOFFER BOOK AWARD

ERIC HOFFER BOOK AWARD

LADY PARTS - feature film

LADY PARTS - feature film
A dark comedy highlighting what it’s like to be a BRCA positive female at high risk of developing breast & ovarian cancer - Click on image to learn more!

“Resurrection Lily” a bodypainting I did that was created for a cause and a book. Have a look. Serious life changing info about hereditary cancer. 🌸 #mywork #nolaart #create #craigtracy #craigtracyart… https://t.co/txqgzeJ5Ze

— Craig Tracy (@CraigTracyArt) February 18, 2020

LIST OF RESOURCES!

  • @BRCAresponder's BRCA & HEREDITARY CANCER BOOK & MOVIE LIST
  • What Age Should you be Tested for a BRCA Mutation? Written by Danielle McKenna, MS, LCGC. BASSER CENTER
  • LIST OF FINANCIAL RESOURCES
  • CLINICAL TRIALS
  • HEREDITARY CANCER NEWS
  • BRCA Support & Communication BASSER RESEARCH CENTER FOR BRCA
  • BRCA Patient Resources UCSF CENTER FOR BRCA RESEARCH

RESOURCE:

Breast Cancer Blogs | Listly List https://t.co/t2vTaMFbY9 via @JBBC
#BreastCancerAwarenessMonth

— Listly (@listly) October 2, 2017

MEN & HEREDITARY CANCER

MEN & HEREDITARY CANCER

My SISTA is FIERCE & LOYAL!

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They are Fierce & Loyal! Best friends since they were 14, my "Sista" Jan and her BFF Megan combined their talents and created a beautiful new jewelry line/brand @fierceandloyaljewelry Read their story of friendship and check out the amazing creations @fierceandloyaljewelry fierceandloyal.com 15% off your first order, details on website #proudsister #bejeweled #jewelry #jewelrydesigner #fashionblogger #fashionnews #newchapter #pavediamonds #checkitout #jewelsofinstagram #jewels #brca #hereditarycancer #pinkandteal #survivor #previvor #bracelet #pendant #beautifulwomen #brandstory #style #stylist #stylistmusthave #styleblogger

A post shared by Amy Byer Shainman (@brcaresponder) on Jun 27, 2020 at 1:01pm PDT

PARTICIPATE IN A RESEARCH STUDY

PARTICIPATE IN A RESEARCH STUDY
Have you met with a cancer genetic counselor but do not have a personal history of cancer? If yes, check out this study about genetic counseling and hereditary cancer.

BOOK REVIEW

Cancer Was Not a Gift & It Didn't Make Me a Better Person: A memoir about cancer as I know itCancer Was Not a Gift & It Didn't Make Me a Better Person: A memoir about cancer as I know it by Nancy Stordahl
My rating: 5 of 5 stars

Raw, Honest, Authentic - MUST READ!
As a patient advocate for those with BRCA and other hereditary cancer syndromes, I personally appreciate Nancy's candor and complete transparency. Her writing is stellar; the book is captivating and on point. People who have a family history of cancer, BRCA gene mutation, or metastatic cancer diagnosis will absolutely appreciate the author's authenticity in this fantastic memoir. Must Read!


View all my reviews

BOOK REVIEW

The Bright HourThe Bright Hour by Nina Riggs
My rating: 3 of 5 stars

Rather quick read. Liked it but did not love it.
Well written. Only 1 page and 1/2 discusses family history and BRCA. As an advocate of course I was wanting more facts and educational information included about breast cancer, family history, and cancer risk.
Enjoyed Nina's relationship with Ginny. Very funny stuff...those were my favorite parts.



View all my reviews

BOOK REVIEW

A Cancer in the Family: Take Control of Your Genetic InheritanceA Cancer in the Family: Take Control of Your Genetic Inheritance by Theodora Ross
My rating: 4 of 5 stars

As a BRCA/Hereditary Cancer Advocate I was excited to read Dr. Ross' book. While I thoroughly enjoyed it, part handbook, part memoir, it's definitely worth the purchase just for the index! Pages 201-266 list inherited cancer syndromes by name and associated gene. Lifetime cancer risks associated with each syndrome are also spelled out in addition to current risk management guidelines for both women and men.

Those interested in health and science would enjoy this book.
Medical students and ALL DOCTORS in ALL SPECIALTIES would benefit from reading this book.
@BRCAresponder




View all my reviews

BOOK REVIEW

Calling the Shots in Your Medical CareCalling the Shots in Your Medical Care by Beth Gainer
My rating: 5 of 5 stars

Excellent book by Beth Gainer. Using her own experiences as a guide, Beth illustrates exactly how to advocate for yourself with your medical care.
Clear examples and suggestions are given. A great handbook of empowerment for any patient.

View all my reviews

MEDICAL DISCLAIMER

Information and resources on brcaresponder.blogspot.com should not be used as a substitute for professional medical care. it is always important to do your own research and work with your own medical professionals regarding your own personal health issues & concerns.

Discussing Cancer Risk Management

Discussing Cancer Risk Management
Cure Magazine

BOOK REVIEW

Dangerous Boobies: Breaking Up with My Time-Bomb BreastsDangerous Boobies: Breaking Up with My Time-Bomb Breasts by Caitlin Brodnick
My rating: 4 of 5 stars

I've never met comedian and author Caitlin Brodnick but I have heard her voice on her Screw You Cancer series: https://video.glamour.com/series/scre... Full disclosure: I also interviewed Caitlin via twitter for a blog post on this book: http://thebrcaresponder.blogspot.com/...

My favorite thing about "Dangerous Boobies" is its authentic voice; as I read it was as if Caitlin was reading it to me, in her sweet chirpy voice she writes like she talks raw, honest, fast, confident, sometimes insecure, often anxious, heartily reflective and mostly, "udderly" hysterical. Yup, that was me attempting channel my inner Caitlin.

As an advocate for those with BRCA and other hereditary cancer syndromes, I was excited to read Brodnick's book. I absolutely applaud anyone who is willing to be so open with their experience and Brodnick not only did this with her Screw You Cancer Series but with her book too. All was seemingly rosy as she was recovering in the last of her Screw You Cancer episodes, answering viewer questions. However, we learn in the book that all was not easy. Caitlin sheds light on tougher times post surgery, including struggling with serious depression.

I appreciate the places in the book where Brodnick gets statistics and information straight from the experts. Regarding genetic testing, I am thankful she says to see a genetic counselor and find out the facts. (I'm adding here that you can find a certified genetic counselor by phone or in person at: http://nsgc.org)

If you want to get a quick taste of Caitlin's humor and tone, just take a look at her chapter titles. My favorite one..."CANCER IS AN EMOTIONLESS BITCH WHO WILL RUIN YOUR BRUNCH PLANS"! Another chapter, TITTY TITTY BANG BANG: THE SEX PART, where she discusses having sex with her husband for the first time after surgery. The first sentence of that chapter is "Author's note: Dad and Grandpa, please skip to page 145." So perfect.

And, I cannot end this review without mentioning some stunning similarities I learned Caitlin and I have:

1. We both have the BRCA 1 5385insC mutation
2. We both have neurocardiogenic syncope
3. We both lost a close female relative at 33 years old
4. We both have Jewish fathers named Al
5. We both have moms that are hot shiksas
6. We both love writing, I'm writing my book now
7. We both have fair skin and reddish hair
8. We both have one leg shorter than the other

Very happy I ready this.
Very funny. Very real.
Very happy this is a resource I can recommend to others!
XO Amy @BRCAresponder

View all my reviews

BOOK REVIEW

Understanding BRCA: Living with the Breast Cancer GeneUnderstanding BRCA: Living with the Breast Cancer Gene by Clarissa Foster
My rating: 5 of 5 stars

FINALLY finished reading this Clarissa! As an advocate providing education, advocacy, and support surrounding BRCA and other hereditary cancer syndromes, I truly appreciate the time and effort that it took you to complete this amazing book/BRCA resource. Women and men in the UK will absolutely benefit from the all of the guidelines specific to the UK. Others will benefit from the information regarding BRCA mutations. I will be recommending this. Unbelievable glossary, appendix, resources, and index.


View all my reviews

Sharing my story

Sharing my story
Jupiter Medical Center

"SISTA"

"SISTA"
My Guest Post on Nancy's Point

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GOT RISK? Where should you go? The best 1st step is to contact a certified genetic counselor.

GOT RISK?  Where should you go? The best 1st step is to contact a certified genetic counselor.

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@BRCAresponder on Genetic Testing, Family Histories, & Why Genetic Counseling Is Key!

@BRCAresponder on Genetic Testing, Family Histories, & Why Genetic Counseling Is Key!

Discussing Angelina Jolie

Discussing Angelina Jolie
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LOOKING AT OLD PHOTOS OF MY PATERNAL GRANDPARENTS Lillian & Bo

LOOKING AT OLD PHOTOS OF MY PATERNAL GRANDPARENTS Lillian & Bo
Lillian died in 1934 from breast cancer-she was 33 years old. Bo died in the 60's before I was born.

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About BRCA/Dr. Susan Domchek

@BRCAresponder extras

@BRCAresponder extras

Pink & Blue store

LILLIAN & BO

LILLIAN & BO

LILLIAN & MY DAD circa 1930

LILLIAN & MY DAD circa 1930

ME & MY BEAUTIFUL SISTER JAN

ME & MY BEAUTIFUL SISTER JAN
I am a previvor, Jan is an ovarian, uterine, & breast cancer survivor

Kristin & Me

Kristin & Me
Kristin was BRCA1 positive & passed away of triple negative breast cancer in 2010. She was 42 years old.

BRCA SISTERHOOD

BRCA SISTERHOOD
I co-administer the largest private BRCA facebook support group for women.

My pal Scary Face Dog

My pal Scary Face Dog
Pink & Blue Mascot

MY BRCA TEST RESULT

MY BRCA TEST RESULT
positive for BRCA1 #5385

PINK MOON LOVELIES

PINK MOON LOVELIES
Previvor & Survivor Stories

PRETTY IS WHAT CHANGES

PRETTY IS WHAT CHANGES
An amazing book…the first one I ever read dealing with BRCA/Hereditary Cancer

LETTERS TO DOCTORS

LETTERS TO DOCTORS
BRCA BOOK FOR DOCTORS & PATIENTS

FAVORITE PIC OF ME & MY DAD circa 1972

FAVORITE PIC OF ME & MY DAD circa 1972
I inherited my BRCA1 gene mutation from him.

@BRCAresponder

@BRCAresponder

Thank you for reading my blog!

Thank you for reading my blog!
@BRCAresponder
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